Kate Mathany joins me today to share their experience with their seven-year old SMA type 1, Getty Storm. She's halfway through the "loading phase" (so she's had two of the first four doses), and it's been quite a journey just to get to this point! Read the family blog at gettyowl.org. Company info re: Spinraza here. Follow Byrds Fore A Cure on: Twitter Facebook Instagram LinkedIn And thanks for spreading the word about the 4th Annual Byrds Fore A Cure Golf Classic, in Phoenix on May 6, 2017! Proceeds benefit the Arizona Chapter of Cure SMA!